A blog about a family living with disability, Progressive Familial Intrahepatic Cholestasis type 2, and how fulfilling it can be. This is about our family. Bethany, Eloise, Tony and Samantha. (All content is copyright Sam Marston, please contact author if you wish to use photographs or any other material on this website.)
Tuesday, March 29, 2011
A Very Special Video
This is a video full of little miracles. Each of these children have been touched by liver disease. They are at various stages of the disease, some just starting along the journey, some in need of a transplant and some, like Bethany, who are proof that transplant is a wonderful thing. Sadly, more than one child on this video has passed away because THAT call didn't come in time. There simply aren't enough donors. So many people are willing to donate but that's not enough. You need to register on the organ donor register and you need to talk about it with family and friends so that they know your wishes.
YOU can make a difference. Have you signed the organ donor register? It's so easy! Have a look at THIS link, it tells you about the different ways you can register. You can even register online and it takes less than 2 minutes. Job done. For the sake of 2 minutes, you could save up to 8 lives. Give yourself a reason to smile today, go register now. :)
Thanks so much for posting this. It was special to see so many sweet faces I grew to love on Liver Families, and so many new ones as a reminder that liver disease continues to affect more and more little lives.
My name is Samantha. You can email me at fairenuff@aol.com Along with Tony, my partner, we care for our 2 daughters, Bethany and Eloise. Bethany has a genetic liver disorder Progressive Familial Intrahepatic Cholestasis (PFIC2) which affects her in many ways on a daily basis. She had a liver transplant when she was 5 years old. Here is our story as a family...
How wonderful it feels to be able to update this. Bethany had her transplant recently, aged 5, and is recovering very well.
1 comments:
Thanks so much for posting this. It was special to see so many sweet faces I grew to love on Liver Families, and so many new ones as a reminder that liver disease continues to affect more and more little lives.
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